For the Teen: Managing Your Own Epilepsy

This section speaks directly to you, the teen with epilepsy. Maybe your mom or dad is reading this book; but we would like you to read these pages too. Because as you grow up, you will take on more and more responsibility for your own health, and this is actually part of becoming strong and free.

Epilepsy Does Not Define You

Epilepsy is a part of your life; but it is not what makes you who you are. You are a whole world of your own — with your interests, your dreams, your talents, and your friendships. Many people with epilepsy have become athletes, artists, scientists, doctors; they have followed their dreams. You can too.

Being the Boss of Your Own Health

• Learn to keep track of your medications yourself. Set an alarm on your phone, use a medication app, or get a weekly pill box. Taking your medication is what keeps you seizure-free and free.
• Protect your sleep. Lack of sleep is one of the biggest triggers of seizures. Even on the night before an exam, staying up all night doesn't win you anything — it costs you.
• Say no to alcohol and drugs. These both trigger seizures and interact dangerously with your medications. This isn't a ban; it's protecting yourself.
• Know your own diagnosis. Which epilepsy do you have, which medication do you take and how much, what are your triggers? Knowing these makes you stronger and helps you talk better with your doctor.

Telling Your Friends

Whether or not to tell your friends about your epilepsy is your decision. But having your few closest friends know what to do if a seizure happens keeps you safer. You can simply tell them: “Sometimes I might have a seizure. If it happens, don't panic, turn me on my side, don't put anything in my mouth, and if it lasts more than 5 minutes, call for help. I'll be fine once it passes.” Good friends will respond with understanding.

Remember

Asking questions, asking for help, or sometimes struggling is not weakness. In a life where everyone is dealing with something, you are walking your own path with strength. Your doctor, your family, and your friends are with you on this path.